to all you other special-needs parents out there, i feel like i've struck gold and need to share. we had struggled for a few months with mic-key extensions and syringes falling out of them and making big messes with whatever happened to be in the syringe (usually stomach contents) spilling everywhere and generally being a pain in the ass etc, etc... if you are a parent of a child with a mic-key button i think you know what i'm talking about. rowan was having some redness around his mic-key site and the nurse practitioner from peds surg ordered him an AMT mini button to see if that might fix the problem (the balloon is shaped differently and prevents some of the leaking that was causing his irritation). well, by the time we got the equipment from our DME the redness and leaking had resolved so we haven't changed out the button yet, but we found a great thing with the AMT mini extensions. the feeding and med port are made out of this gummy sticky purple plastic that is SO MUCH BETTER at holding the syringes/feeding tube ports/or whatever you happen to have plugged in there in. we literally have had ZERO disconnects since using the mini extensions. and they fit right into the mic-key button just like a mic-key extension. so my advice to any parent struggling with the accidental disconnect issue, even if your child has a mic-key button, ask your DME for AMT mini extensions rather than regular old mic-key extensions. they are SO MUCH BETTER!
here's a pic:
and they're purple! much cooler. oh, and i forgot to mention that the actual tube is made of more flexible plastic, so they don't get hard and stiff as fast as the mic-key extensions. frankly, i don't know why they even have the mic-key extensions anymore. these are so much better.
alright, well rowan is laying on the floor trying to eat his hands, so i guess i better go get him a bottle!
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